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Medical experts said bills for patients requiring 29

of the 55 rare disease medicines available on the Chinese mainland

have been partly or fully covered by the country’s medical insurance system.

The average medical bill for rare disease patients is 200,000 yuan ($

29,700) a year and more than 40 percent of patients have received no medical tre

atment due to the high prices, according to Li Linkang, China Alliance of Rate Diseases executive director.

Biogen, the United Sates-based pharmaceutical compa

ny that developed the drug, said that it is talking to the C

hinese government, the medical and patient communities, and charitable orga

nizations in a bid to establish a co-payment system to make the drug available to more patients.

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